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  • Answer ALS Announces the Release of the World's Largest Open Sourced ALS Data Portal
    The Answer ALS data portal seeks to empower researchers around the globe with the data needed to finally answer ALS.
  • Packard awards new research grant to fund study axon degeneration
    This grant was made possible through a grant from The Bruce Edwards Foundation.
  • Researchers identify new way to prevent ALS-linked deficits in mice
    In a new study, Packard investigator Mervyn Monteiro showed that increasing the expression of the UBQLN1 gene in a UBQLN2 mouse model of ALS/FTD helped to alleviate some of the behavioral and molecular signs of disease.
  • Research Byte: Light-based strategy shows how major ALS protein causes disease
    Packard scientists Christopher Donnelly and Udai Pandey are using a strategy called optogenetics to study how TDP-43 causes disease

What is ALS?

Amyotrophic lateral sclerosis (ALS), also known as called Lou Gehrig's, disease is a rapidly progressive, fatal neurological disease that attacks the nerve cells (neurons) responsible for controlling voluntary muscles.  The average life span from diagnosis is two to five years.  There is no cure.

Understanding ALS

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