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Mailing address:

Robert Packard Center for ALS Research at Johns Hopkins
The John G. Rangos Building
855 N Wolfe Street, 2nd floor
Suite 279, Room 232
Baltimore, MD  21205

410-955-8635 | Fax: 410-614-0659

For questions relating to administration, funding and research grants, contact:

Emily Baxi
Executive Director
Tel: 410-614-7650 | Fax: 410-614-0659
epotter6@jhmi.edu

To make a gift or to host a fundraising event, contact:

Meg B. Whiteford
Associate Director of Development
Tel:  410-955-8684
mwhiteford@jhmi.edu

For media inquiries, the newsletter, information on scientific meetings and the Fiesta 5K, contact:

Suzanne Connelly
Communications Officer
Tel: 443-564-0977
sconnel6@jhmi.edu

For information on clinical trials and the ALS Clinic at Johns Hopkins, contact:

Lora Clawson, MSN, CRNP
Director of ALS Clinical Services
Assistant Professor in Neurology
Tel: 410-955-8511
lclawson@jhmi.edu

To make an appointment with Dr. Jeffrey Rothstein, or for questions relating to ALS research, contact:

Denise Tawney
Clinical Administrative Assistant to Dr. Jeffrey Rothstein, Director of the Packard Center
Johns Hopkins Neurology
The John G. Rangos Sr. Building
Room 248, 2nd Floor
855 N. Wolfe Street
Baltimore, MD 21205
Tel: 410-955-2227 | Fax: 410-502-5459
dtawney1@jhmi.edu

Barbara Smith
Administrative Manager and Assistant to Dr. Jeffrey Rothstein
Johns Hopkins Brain Science Institute
NeuroTranslational Program
The John G. Rangos, Sr. Building
855 N. Wolfe Street, Suite 279
Baltimore, MD 21205
Tel: 410-955-4504 
bsmith13@jhmi.edu
www.hopkinsmedicine.org/brainscience

Our Experts

Johns Hopkins University
Neurologist Charlotte Sumner has a long history of studying neuromuscular disorders. In particular, she has focused her attention on caring for patients with inherited motor neuron and peripheral nerve disorders such as spinal muscular atrophy and Charcot-Marie-Tooth disease. Her work on the molecular pathogenesis of spinal muscular atrophy and the development of therapeutics may provide important clues for those with ALS.