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Mailing address:

Robert Packard Center for ALS Research at Johns Hopkins
The John G. Rangos Building
855 N Wolfe Street, 2nd floor
Room 228
Baltimore, MD  21205

410-955-8635 | Fax: 410-614-0659

For questions relating to administration, funding, media relations and research grants, contact:

Suzanne Connelly
Tel: 443-564-0977

To make a gift or to host a fundraising event, contact:

Meg B. Whiteford
Associate Director of Development
Tel:  410-955-8684


For information on clinical trials and the ALS Clinic at Johns Hopkins, contact:

Lora Clawson, MSN, CRNP
Director of ALS Clinical Services
Assistant Professor in Neurology
Tel: 410-955-8511

To make an appointment with Dr. Jeffrey Rothstein, or for questions relating to ALS research, contact:

Denise Tawney
Clinical Administrative Assistant to Dr. Jeffrey Rothstein, Director of the Packard Center
Johns Hopkins Neurology
The John G. Rangos Sr. Building
Room 248, 2nd Floor
855 N. Wolfe Street
Baltimore, MD 21205
Tel: 410-955-2227 | Fax: 410-502-5459

Barbara Smith
Administrative Manager and Assistant to Dr. Jeffrey Rothstein
Johns Hopkins Brain Science Institute
NeuroTranslational Program
The John G. Rangos, Sr. Building
855 N. Wolfe Street, Room 276
Baltimore, MD 21205
Tel: 410-955-4504

Our Experts

Johns Hopkins University
Neurologist Charlotte Sumner has a long history of studying neuromuscular disorders. In particular, she has focused her attention on caring for patients with inherited motor neuron and peripheral nerve disorders such as spinal muscular atrophy and Charcot-Marie-Tooth disease. Her work on the molecular pathogenesis of spinal muscular atrophy and the development of therapeutics may provide important clues for those with ALS.