ALS Headlines
Sep 14
2020
In a new study, a team of Packard scientists identified a key intersection between two major pathways of pathology in ALS and frontotemporal dementia (FTD)
Read the full article in Science Translational Medicine
Sep 3
2020
Results of a new Phase 2 randomized clinical trial in 137 patients with ALS showed that treatment with the drugs sodium phenylbutyrate and taurursodiol, combined together, could significantly slow functional decline over 24 weeks compared to placebo.
Read more about the trial in a recent article on www.nytimes.com
Jun 3
2020
Neuroscientists at Thomas Jefferson University have identified a new way that repeat expansion in the C9orf72 gene—the most common genetic cause of ALS and FTD—can contribute to ALS.
Read the full journal article here
May 28
2020
From the L.A. Times: Former Rams player turned firefighter fights for hope amid ALS
Read the full article here:
May 8
2020
A new set of Answer ALS project data is now available through the Answer ALS Data Portal
To search the data, please visit the Answer ALS Data Portal!
Jul 16
2019
Rahul Desikan, a neurologist with UCSF, passes away after a brief battle with ALS
Click here to read his full obituary:
Mar 22
2019
Scientists developed a method of “baiting” a protein that would otherwise ball up into toxic clumps and damage brain function.
To read the entire article:
Jan 14
2019
A new Packard study found that found that excitotoxic stress and hyperactivity in neurons increased the production of toxic peptides associated with the C9orf72 repeat expansion.
Nov 15
2018
A new study by Packard scientist Jiou Wang reveals how the ALS-linked protein ubiquilin 2 helps to regulate RNA and protein balance when the cell is stressed.
To read the full study in PNAS, click here:
Oct 31
2018
A new study by Packard scientist Jiou Wang reveals that C9orf72 helps to regulate how cells use fats for energy when starved of glucose.
Read the full article on Genes and Development
