ALS Headlines
Jun 14
2021
A team of Packard-funded scientists, led by Udai Pandey and Chris Donnelly at the University of Pittsburgh, have identified a new mechanism through which mutant FUS can lead to ALS
Jun 14
2021
Packard scientists have identified a new mechanism by which mutations in the UBQLN2 gene lead to ALS
Teams from the University of Maryland and Harvard University have showed that ALS-linked mutations in UBQLN2 compromise import of proteins in large clumps in the cytoplasm.
Jun 4
2021
MLB’s Lou Gehrig Day is a nod to greatness — and humanity
Read the full text on www.washingtonpost.com
May 11
2021
Former Chicago Bears player Steve McMichael reveals he is battling ALS
Read the article on www.usatoday.com
Mar 19
2021
Answer ALS Partners to Launch the 'End ALS Challenge' Digital Competition
Jan 8
2021
The Answer ALS data portal seeks to empower researchers around the globe with the data needed to finally answer ALS.
To see the video tribute
Sep 14
2020
In a new study, a team of Packard scientists identified a key intersection between two major pathways of pathology in ALS and frontotemporal dementia (FTD)
Read the full article in Science Translational Medicine
Sep 3
2020
Results of a new Phase 2 randomized clinical trial in 137 patients with ALS showed that treatment with the drugs sodium phenylbutyrate and taurursodiol, combined together, could significantly slow functional decline over 24 weeks compared to placebo.
Read more about the trial in a recent article on www.nytimes.com
Jun 3
2020
Neuroscientists at Thomas Jefferson University have identified a new way that repeat expansion in the C9orf72 gene—the most common genetic cause of ALS and FTD—can contribute to ALS.
Read the full journal article here
May 28
2020
From the L.A. Times: Former Rams player turned firefighter fights for hope amid ALS
Read the full article here:
