Skip Navigation

ALS News

field with sun shining

ALS Headlines

Mar 19
2021
ALS Headlines, Packard Center News
Answer ALS Partners to Launch the 'End ALS Challenge' Digital Competition
Jan 8
2021
ALS Headlines, Breaking Research, Packard Center News
The Answer ALS data portal seeks to empower researchers around the globe with the data needed to finally answer ALS.
To see the video tribute
Sep 14
2020
ALS Headlines, Packard Center News
In a new study, a team of Packard scientists identified a key intersection between two major pathways of pathology in ALS and frontotemporal dementia (FTD)
Read the full article in Science Translational Medicine
Sep 3
2020
ALS Headlines, Packard Center News
Results of a new Phase 2 randomized clinical trial in 137 patients with ALS showed that treatment with the drugs sodium phenylbutyrate and taurursodiol, combined together, could significantly slow functional decline over 24 weeks compared to placebo.
Read more about the trial in a recent article on www.nytimes.com
Jun 3
2020
ALS Headlines, Packard Center News
Neuroscientists at Thomas Jefferson University have identified a new way that repeat expansion in the C9orf72 gene—the most common genetic cause of ALS and FTD—can contribute to ALS.
Read the full journal article here
May 28
2020
ALS Headlines
From the L.A. Times: Former Rams player turned firefighter fights for hope amid ALS
Read the full article here:
May 8
2020
ALS Headlines, Packard Center News
A new set of Answer ALS project data is now available through the Answer ALS Data Portal
To search the data, please visit the Answer ALS Data Portal!
Jul 16
2019
ALS Headlines
Rahul Desikan, a neurologist with UCSF, passes away after a brief battle with ALS
Click here to read his full obituary:
Mar 22
2019
ALS Headlines
Scientists developed a method of “baiting” a protein that would otherwise ball up into toxic clumps and damage brain function.
To read the entire article:
Jan 14
2019
ALS Headlines, Packard Center News
A new Packard study found that found that excitotoxic stress and hyperactivity in neurons increased the production of toxic peptides associated with the C9orf72 repeat expansion.