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ALS Alert Newsletter

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Dec 9

Give the gift of hope this holiday season.

Gifts made through December 31 will be matched dollar-for-dollar (up to a total of $100,000) in celebration of our 20th Anniversary.

Twenty years ago, fueled by his recent diagnosis of amyotrophic lateral sclerosis (ALS), Robert Packard collaborated with his gifted clinician and researcher to change the landscape of ALS scientific progress. This unique model looked beyond siloed medical research and instead brought together investigators from across academic institutions and the world who were working outside of traditional norms. From the start, collaborating and sharing both data and methodology were not just encouraged, they were required.

This collaboration and partnership formed the Robert Packard Center for ALS Research at Johns Hopkins and two decades later, the Packard Center endures and is now the basis for much of the current and cutting-edge research into the disease.

Since its inception, the Packard Center, which is entirely supported by philanthropic dollars, has been wholly invested in ALS research. This has enabled more than 200 novel projects and has led to the development of 60 new models of the disease and the discovery of 12 disease mechanisms linked to ALS. As a result, the Packard Center has contributed directly or in part to the development of the FDA approved treatment, riluzole, and multiple other promising drugs that are currently in clinical trials.

In celebration of the 20th anniversary of the Packard Center's founding, the family and close friends of Bob Packard have come together to offer a 1:1 match on all donations made through December 31, 2020, up to a total of $100,000.

Help us continue Bob Packard's legacy to end ALS. To make a gift, please visit: